BUMBLEance is a local Irish nationally registered charity that is the most technologically advanced ambulance on the planet. It has games like SONY Playstation, IPad’s, audio and video entertainment and even its own wifi. This is all to reduce the stress to any children on the ambulance as they travel to treatments and hospital here or overseas.
When Tony & Mary Heffernan were told that their only daughter Saoirse had Batten Disease on the 25th of September 2009, they left the hospital in Dublin with no information about Batten Disease, what to expect or where to look for help. They vowed that this would have to change.
In March 2010, the Heffernan family received more bad news when their son Liam was also diagnosed with Batten Disease.
Tony and Mary decided to set up the Saoirse Foundation to provide parents, families and all those affected by Batten Disease on the island of Ireland with support, networking and a credible source of information
They are here for the sick children of Ireland, both from rural and urban areas, who are long term sick and /or seriously disabled, who need professional ambulance transport services. Catering for their every need en route to and from the principal centres of care.
Sadly both of their children have now since passed of this disease but Liam has a legacy left called Liams Lodge which is progressing well but will need our continued support over the coming months and years.
Myself and about 30 others walked over hot coals for this amazing charity, if you feel you can volunteer your time or sponsor/raise money for them, please either contact them or myself and we will do our best to support you.
Can you become a “Bee for Battens“?